What is palliative care?
Palliative care is person- and family-centred care that is focused on comfort, quality of life and a patient’s total wellbeing while a person has an active, progressive, life-limiting or terminal illness.
Palliative care plays an important role after diagnosis, during and after treatment – including supportive treatment to help manage the symptom burden – and at the end of life.
It is important to understand that palliative care is appropriate at any time during the cancer journey. People who access palliative care early tend to have an improved quality of life and reduced distress due to symptoms.
Recent studies have shown that people who have early palliative care may live longer, with fewer symptoms and with a better quality of life than patients who did not have palliative care.
I am sorry I didn’t know earlier how Palliative Care could have helped our family as dad was getting more unwell. I did not understand that this care was available alongside his other treatments. This care was amazing and the follow up for the family continued even after he passed away.
Irene, carer of her dad with pancreatic cancer
Who provides palliative care?
Patients may receive palliative care from a wide range of people including primary care physicians and nurses; oncologists; palliative care specialists and nurse practitioners; other medical specialists; or hospice organisations. It can be provided alongside other treatments, or it can become the focus of care.
Palliative care guides families and carers through decision-making to allow them to work toward their healthcare goals. These goals may include the hope to prolong life and to encourage peace and dignity throughout the illness and at the end of life.
What services are offered under palliative care?
Palliative care identifies and treats symptoms which may be physical, emotional, spiritual, or social and can be delivered anywhere, including at home, in a hospital or nursing home, through outpatient care or in any other setting. Because palliative care is based on individual needs, the services offered will differ, but may include:
- relief of pain and other symptoms, e.g. vomiting, shortness of breath
- resources such as equipment needed to aid care at home
- assistance for families to come together to talk about sensitive issues
- links to other services such as home help and financial support
- support for people to meet cultural obligations
- support for emotional, social and spiritual concerns
- counselling and grief support
- referrals to respite care services.
As much as palliative care is a person-centred, it is also a family-centred model of care, meaning that family and carers can receive practical and emotional support.
Community palliative care, they have a 24 hour number, if I have breakthrough pain or its really late they come – its gets me through. I feel really comfortable with that, it’s great, I don’t need to go to hospital.
Jason, 44yrs with pancreatic cancer
End-of-life palliative care
End-of-life palliative care is provided in the last few weeks of life, in which a patient with a life-limiting illness is rapidly approaching death. The needs of patients and their carers is higher at this time.
This phase of palliative care is recognised as one in which increased services and support are essential to ensure high quality, coordinated care from the health care team is being delivered. This takes into account the terminal phase, or when the patient is recognised as imminently dying, and extends to bereavement care.
Palliative Care Australia
This information has been produced with the assistance of Palliative Care Australia. Palliative Care Australia is the national peak body for palliative care. Palliative Care Australia works closely with consumers and the palliative care workforce with the aim to improve access to, and promote the need for, palliative care.